Nina's progress

Yesterday was a day filled with doctor’s appointments. Nina’s platelets were low on Friday (23). They should be no lower than 20. On Sunday she had a spot on her arm that would not stop bleeding. She also had petechia (small purple spots on her body from small blood vessels bursting near the skin due to low platelets). So, our first stop was CHOC cancer institute to have blood drawn to check platelets. After this we went to have her three-month MRI. Then we headed to her ob/gyn appointment. The doctor said that they were unable to read the ultrasound of her uterus and ovaries. A MRI will be done instead. Nina’s bone density test read low / average number. The test will be repeated yearly and if the number drops at all she will have to be treated (with medication). The reason there is a problem with her bone density is because she has very low estrogen levels due to the tumor. Estrogen effects calcium in the bones. Therefore, low bone density. After this appointment we headed back to the Cancer institute for blood work results. Nina’s platelets had dropped to 8 over the weekend. Nina had to have a platelet transfusion. She had a reaction during the transfusion (hives on her face). They administered benadryl (two doses), and steroids. The hives subsided. Next we headed to the neurosurgeons office to have both of her shunts adjusted. The neurosurgeon was not in to the read the MRI.Today CHOC cancer institute called me and told me they received the MRI and there is a reduction in tumor size!!!!!!!!!! I know the reading of the MRI can be subjective. So, we have an appointment scheduled for Wednesday with the neurosurgeon to have him read the MRI.